Status

Turn the Page

Monday, February 25th, 2013.  CD12.

A few things have happened over the course of the last week…

First, I received a packet of my medical records from when I participated in the AMIGOS study through Wayne State University.  I absolutely love having my records in my hands, because I like reading the notes and the lab results and consulting Dr. Google about any abnormalities!

Sadly, the few tiny abnormalities I did find were pretty much inconclusive to Dr. Google and myself.  Guess one of us needs a real medical degree to determine what’s going on there… Either that, or nothing is actually wrong.  Which I doubt.

Second, since all of my latest test results came back within normal ranges, I was waiting for Dr. K to call and let me know where I should go from here.  I had asked about genetic testing for the husband and myself, DNA karyotyping, and a laparoscopy.  When he had his (nice) nurse call me back, she said that the doc wasn’t too keen on genetics or karyotyping since we’ve only had one miscarriage.

ONLY ONE?  That’s not ENOUGH??

Anyway, he also said that there was no reason to do a laparoscopy without a prior diagnosis of endometriosis.  When I mentioned that I thought diagnosing endometriosis required a laparoscopy, the nurse said that they hadn’t seen anything via ultrasound to make them think that endo was a possibility, and that most insurance wouldn’t cover the lap anyway.

Uhh… what was that now?  Talk about going in circles… Yeesh.

Nice Nurse also said that the doc still recommends going through with a full injects and IUI cycle next, and to contact them when I have meds in hand for the full details.

Third, I made a decision to seek out the help of another doctor.  Specifically, I am going to see the head of Reproductive Medicine at the University of Michigan.  Dr. F seems more open-minded about “outside of the box” diagnoses and treatments, and she came to me highly recommended by one of the doctors I used to see at Wayne State.

This was on her “About Me” page:

Sometimes the solution doesn’t require extraordinary measures.  Dr. F also helps women who have medical conditions such as thyroid or pituitary abnormalities that make them infertile. She says, “A woman’s treatment may be having her health optimized.” Treating the underlying medical condition may mean that a couple doesn’t need assisted reproductive technologies to overcome infertility.

YES.  MOTHER OF GOD, YES!

So now I am going about the monumental task of accumulating my medical records and getting a second referral from my snooty PCP.  This woman likes to second guess everything I do, and it sounds like although I saw her for my annual physical just two weeks ago, she is going to make me come in to consult with her again to ask for a referral to another specialist.

Oy.

But whatever… I’ll do what I have to do.  I just have to make sure I do it quick, as the appointment is surprisingly soon –  March 12th!

I’m excited about having another set of ears to listen to my woes, and I hope this doctor will let me lay it all out for her.  My goal is to educate myself on everything I’ve been through up until this point, and and to be knowledgeable about any and all potential diagnoses that may be in my future.  I also want to be prepared for the possibility of surgery, expensive and more invasive treatments, and worst of all – the possibility of remaining “unexplained”.

I’m still not any closer to a diagnosis, a solution, or a baby, but I feel like making this decision is an important step in that direction.

And at my age, every step matters…

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10 comments on “Turn the Page

  1. Erin
    February 25, 2013 at 2:22 pm #

    A couple things: The “only one miscarriage” thing is such bullshit. It’s a miscarriage, plus all this time of trying. You could be having chemical pregnancies and no one would ever know. I’ve been told “it’s only been one,” and then, “it’s only been two,” and then I fired those effers and found someone who would just order the freaking tests. What harm could there possibly be in just ordering the tests?!

    About endo: I really do believe it’s something doctors know very little about, and that it’s undetectable unless they go in for a lap. If you ever reach a point where you’re looking for someone at the forefront of this area, there’s a doctor at Stanford who is a genius in this area. I know it’d mean traveling for you, but I actually know of women who have traveled to this doctor so he could do their surgeries. And I personally know two women who both had endometriosis, neither of whom would have known about it if Dr. Nezhat hadn’t done laps on them, and both had raging endo. One had a baby and one is now in her second trimester. http://www.nezhat.org/

    Perhaps your new Michigan U doc will also be a mad genius in this area! I just felt I had to mention Dr. N in case you ever need his info.

    Like

    • Tracy
      February 25, 2013 at 2:43 pm #

      That’s GREAT to know, Erin, thank you!! I am going to consult with this new doc, and see what she thinks. She is known for endometriosis treatment, and there are a few other docs in the practice who also have been on the forefront of research and surgeries in this area, so I feel pretty good about it. I wouldn’t be opposed to traveling for the best of the best, though, so I will keep Dr. N in mind!! 🙂

      Like

  2. Sarah
    February 25, 2013 at 2:27 pm #

    I’m not glad that Dr. K is blowing you off, but I am glad you are seeking another opinion. Happy thoughts and baby dust!

    Like

    • Tracy
      February 25, 2013 at 2:41 pm #

      Thank you, Sarah! I don’t know if you’re the Sarah that suggested Dr. S to me, but he is also still an option. I just found that the UofM docs take my insurance, and that’s a big help!

      Like

      • Sarah
        February 26, 2013 at 12:30 pm #

        Yes, that was me! I love Dr. S! And I’m jealous that your insurance covers some form of treatment! Ours is terrible!!! Even the pharmacist at Crary said to me, “wow, you literally have NO prescription coverage!” to which I replied that I have literally no coverage on anything! lol.

        Like

  3. Susy_Sama
    February 25, 2013 at 2:30 pm #

    All the best sweety! March 12th is just around the corner! I keep on wondering how come REs’ protocols can be so different in different parts of the world. My RE told me that having done IUIs (4) with my gyn without a lap had been like “firing gunshots in the dark”. He said, a lap should have been done BEFORE any IUIs because “that’s the protocol”. It took me a whole year to make peace with surgery and in my case he was right (he found a mild case of endo which did NOT show in the million u/s I had). I wonder if the fact that laps ARE covered by insurance down here plays a role in doing them/not doing them…

    Like

    • Tracy
      February 25, 2013 at 2:40 pm #

      The thing is, my insurance will cover a lap even if it’s exploratory and part of the diagnosis process! No one bothered to check, and even when I asked, they didn’t seem too keen on the idea. My guess is that my doc doesn’t do many laps himself, and doesn’t want to refer me to another doctor. Grrr!

      Like

    • Kitten
      February 26, 2013 at 9:10 am #

      My RE and OB said the same. Hell, my OB wouldn’t even give me Clomid without an HSG and SA. When I started getting cysts, the RE wouldn’t even see me until I’d had a lap. Endo does NOT show up in ultrasounds. I had zero symptoms, but a severe case of endo. Wishing you the best!

      Like

  4. Tanya
    February 26, 2013 at 10:20 am #

    So glad you’re seeking out another opinion. I hope you find answers soon!

    Like

  5. Isabel
    February 26, 2013 at 10:55 am #

    The going in circles part is spot on. Sometimes (OK, most times) dealing with doctors can be so frustrating. Specially when there is an infertility diagnosis. It’s like they talk in riddles and contradict themselves. I am too stuck, waiting for the “next step” and it’s been a little frustrating.

    Wishing you good luck with your new doctor!

    Like

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