Monday, February 25th, 2013. CD12.
A few things have happened over the course of the last week…
First, I received a packet of my medical records from when I participated in the AMIGOS study through Wayne State University. I absolutely love having my records in my hands, because I like reading the notes and the lab results and consulting Dr. Google about any abnormalities!
Sadly, the few tiny abnormalities I did find were pretty much inconclusive to Dr. Google and myself. Guess one of us needs a real medical degree to determine what’s going on there… Either that, or nothing is actually wrong. Which I doubt.
Second, since all of my latest test results came back within normal ranges, I was waiting for Dr. K to call and let me know where I should go from here. I had asked about genetic testing for the husband and myself, DNA karyotyping, and a laparoscopy. When he had his (nice) nurse call me back, she said that the doc wasn’t too keen on genetics or karyotyping since we’ve only had one miscarriage.
ONLY ONE? That’s not ENOUGH??
Anyway, he also said that there was no reason to do a laparoscopy without a prior diagnosis of endometriosis. When I mentioned that I thought diagnosing endometriosis required a laparoscopy, the nurse said that they hadn’t seen anything via ultrasound to make them think that endo was a possibility, and that most insurance wouldn’t cover the lap anyway.
Uhh… what was that now? Talk about going in circles… Yeesh.
Nice Nurse also said that the doc still recommends going through with a full injects and IUI cycle next, and to contact them when I have meds in hand for the full details.
Third, I made a decision to seek out the help of another doctor. Specifically, I am going to see the head of Reproductive Medicine at the University of Michigan. Dr. F seems more open-minded about “outside of the box” diagnoses and treatments, and she came to me highly recommended by one of the doctors I used to see at Wayne State.
This was on her “About Me” page:
Sometimes the solution doesn’t require extraordinary measures. Dr. F also helps women who have medical conditions such as thyroid or pituitary abnormalities that make them infertile. She says, “A woman’s treatment may be having her health optimized.” Treating the underlying medical condition may mean that a couple doesn’t need assisted reproductive technologies to overcome infertility.
YES. MOTHER OF GOD, YES!
So now I am going about the monumental task of accumulating my medical records and getting a second referral from my snooty PCP. This woman likes to second guess everything I do, and it sounds like although I saw her for my annual physical just two weeks ago, she is going to make me come in to consult with her again to ask for a referral to another specialist.
But whatever… I’ll do what I have to do. I just have to make sure I do it quick, as the appointment is surprisingly soon – March 12th!
I’m excited about having another set of ears to listen to my woes, and I hope this doctor will let me lay it all out for her. My goal is to educate myself on everything I’ve been through up until this point, and and to be knowledgeable about any and all potential diagnoses that may be in my future. I also want to be prepared for the possibility of surgery, expensive and more invasive treatments, and worst of all – the possibility of remaining “unexplained”.
I’m still not any closer to a diagnosis, a solution, or a baby, but I feel like making this decision is an important step in that direction.
And at my age, every step matters…